Have a Beautiful Relaxing Day:You Are More

 

‪#‎Sunday‬ ‪#‎Blessings‬ ‪#‎takeCareofYou‬ ‪#‎share‬ ‪#‎tagTeam‬ ‪#‎ALS‬ ‪#‎Family‬‪#‎Friends‬ ‪#‎Inspiration‬ ‪#‎Encouragement‬ ‪#‎YouAreMore‬ ‪#‎Unique‬ ‪#‎Beautiful‬

Good Afternoon

#goodafternoon

Join Me In Staying Strong

#A1000Reasons #StayStrong #laugh #smile

Tell FDA to Stop Denying Treatment Options

Smile & Have a Great Tuesday

Smile and Have a Great Tuesday

#Tuesday #GreatDay #smile

Causes ALS aka Lou Gehrig's Disease, Dr. Lonnie Herman

http://www.facebook.com/DrLonnieHerman

 

Dr. Lonnie Herman has graciously agreed to do a webinar on what he has concluded causes ALS! Register today and reserve a space! ALS-Finding The Hidden Causes Webinar by Dr. Lonnie Herman. Wednesday, June 8th, 5:00 pm Eastern Standard Time Register for the event here: https://attendee.gotowebinar.com/regist…/3022174110184494852 
Try to watch this video before the webinar so you have a better understanding of what he is referring to: https://www.youtube.com/watch?v=R8VyUsVOic0&feature=youtu.be 
 Here is a preview of Dr. Herman's work in ALS: https://www.youtube.com/watch?v=XQpfWz5vC68 
Time to beat this beast called ALS! Hope to see you all there!

Happy Monday

#Monday

CReATe Virtual Journal Club; Helping Patients and Families Understand Scientific Papers

 

From Dr. Richard Bedlack: 
CReATe Virtual Journal Clubs are designed to help patients and families better understand recent scientific papers on topics related to motor neuron diseases. The articles are selected by folks enrolled in CReATe Connect. Enrollment in this is easy and free at https://www.rarediseasesnetwork.org/…/patien…/CReATe-Connect 
 Our next CReATe Virtual Journal Club is tomorrow, when I will be discussing my recent paper entitled "How Common Are ALS Plateaus and Reversals." Everyone is welcome to listen in and there will definitely be time for questions afterward. 
Webinar Details: Date: Mon, June 6, 2016 Time: 2PM Eastern Standard Time Link to join: https://global.gotomeeting.com/join/149540773
 
 For audio, you may use your computer mic/speakers through the link above or call in using your phone: United States (Toll-free): 1 877 309 2070 & use Meeting ID/Access Code: 149-540-773

#webinar #CReATe #VirtualJournalClubs #MotorNeuronDisease #ScientificJournals 
#GivingUnderstanding

When You Can't Look On Bright Side

You don't have to do it alone!

If you haven't already, please join us on facebook
https://www.facebook.com/ALSLouGherigDisease/

 

#StayingAliveIsNotEnough #NeverAlone #ALS #IWillSitWithYou #ALS

In Memory of Lou Gehrig

Thanks to Rick Berger for the image.

#Als #LouGehrig #Memory

Get Up, Dress Up, Show Up and Never Give Up

I have heard Dagmar Munn talk about getting up, dressing up, and showing up. Many times we read something or watch a video but we don't take action. We don't think it fits us or we just don't bother. After all we have ALS or our friend or loved one does. Why bother and just give up hope. NOT! Today be creative in taking action and share it with us.
Maybe it's sitting up, having a bow put in your hair. If your a guy how about getting a shave and a clean pair of socks. Have someone open the window. If you can be mobile have your caregiver/family/friend exercise your legs or get out for a walk.  Caregiver, family or friend...dress a bit nicer today. put on a smile,  take time to eat breakfast or lunch today.
Share with us will you all please! 

#GetUp #ShowUp #DressUp #NeverGiveUp

Good Evening

I hope your day has been alright. Feel free to share what your day has been like.

#Goodevening #sharing

Who are the Sid James Experience? We catch their manager, Lord Lee Bragg at work….

Tonight we catch Lord Lee Bragg, exclusive agent to the Sid James Experience, organising the June 4th MNDA fundraiser. We are also reminded of the sound that has taken the Sid James Experience in the last 20 years all the way from central Farnham to the hard shoulder of the A31. 
  https://onein400.com/2016/06/01/who-are-the-sid-james-experience-we-catch-their-manager-lord-lee-bragg-at-work/

 #SidJames#awareness #MND #ALS #Onein400

Strike Out ALS

In Honor of ALS Month 10% of all purchases from this link https://www.youniqueproducts.com/KLD/party/4090068/view
will be donated to the ALS Association to find a cure. For every $100 purchase you will recieve a free gift up to $30. All purchases will be entered to win the beachfront collection set from Younique. 

The aim of ALS awareness month is to raise awareness about ALS, gather support for those affected by this condition and to encourage funding and research into a treatment or cure.

ALS (amyotrophic lateral sclerosis) is a devastating progressive neurodegenerative disease which destroys the ability to walk, speak, eat and breathe. ALS was first recognized as a disease in 1869, by Jean-Martin Charcot, a French Neurologist. However, ALS is sometimes referred as Lou Gehrig's disease; named after Lou Gehrig, a famous baseball first basemen, whose career was stopped in 1939 when he developed ALS at the age of 36. At that time, ALS was given widespread public attention due to the high profile of this baseball player.


#ALS #StrikeOutALS

ALS Exercise with Dagmar Munn

 I firmly believe exercise no matter how small can make so much difference in our overall well being.

Dagmar inspires me so much. Having ALS does not stop Dagmar from doing all she can to stay healthy and fit.
Her creativity and tenacity to have a quality of life is an inspiration for all of us to follow.

We are all at different stages with ALS. If your not mobile ask your caregiver, and/or family members to do exercises with you. 

Watch Dagmar's video below and be sure to visit and join her blog. Your sure to be inspired to keep living a quality of life at whatever place your at. 

In this video, watch some gentle chair exercises for people living with ALS. Dagmar Munn shared this video in 2015, where she demonstrates some gentle exercises directed at patients with low mobility. They are really simple, slow, easy-to-follow sequences of movement that provide a break from long periods of sitting still.  You can find more details and more exercises like this in her blog: ALS and Wellness Blog – “Move Along"

 

Also be sure to visit https://alsnewstoday.com/2016/04/22/als-exercises-move-along/ for news and information as you proceed on your journey. 

#alsnewstoday #als #DagmarMunn #exercise #qualityofLife