Susan's story profoundly touches my life. Her courage and determination to live with joy and go for all the gusto she was able with her family, friends and doing things she loved doing. Never a more grateful example of an individual have I encountered. Susan is an example for all of us with ALS, caregivers, family and friends to keep before us as we go forth combatting this evil thief of a disease, ALS!
Cindy
Susan
Spencer-Wendel’s Until I Say Good-Bye: My Year of Living with Joy is a
moving and inspirational memoir by a woman who makes the most of her
final days after discovering she has amyotrophic lateral sclerosis
(ALS).
After Spencer-Wendel, a celebrated journalist at the Palm Beach Post,
learns of her diagnosis of ALS, more commonly known as Lou Gehrig’s
disease, she embarks on several adventures, traveling to several
countries and sharing special experiences with loved ones. One trip
takes Spencer-Wendel and her fourteen-year-old daughter, Marina, to New
York City’s Kleinfeld’s Bridal to shop for Marina’s future wedding
dress—an occasion that Susan knows she will never see.
Co-written with Bret Witter, Until I Say Good-Bye is Spencer-Wendel’s
account of living a full life with humor, courage, and love, but also
accepting death with grace and dignity. It’s a celebration of life, a
look into the face of death, and the effort we must make to show the
people that we love and care about how very much they mean to us.
#video #als #SusanSpencerWendel ##UntilISayGoodbye #book
