'CartKid' Brings Awareness & Provides Money for an End to ALS

Ben Costain's mother, Valerie Sue Costain passed away December of 2012 with ALS. Ben with his business partner, Craig Foss have developed a game, 'CartKid'.
Ben's motivation for designing this app and all future apps. is to give 5% of all revenue to the ALSA.org organization in his mother's name & honor.

Ben has reached out to ALS of Northern New England and they have agreed to share the game on their page. Would you mind sharing Ben's game and help bring answers and an end to ALS? Please help Ben to build awareness and raise as much money as possible.

You can further show your support by getting "Cart Kid".
Cart Kid is a worldwide gaming app, available on both Apple and Android app stores. Our main purpose is to raise money and spread awareness to defeat ALS. Please check out the game and share if you will please to bring awareness and an end to ALS.
You can also find 'Cart Kid' on facebook as well here:https://www.facebook.com/CartKid/

Thanks for your support and sharing.

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A Seeker's Harvest

What did Kevin Pollari do when given 18-30 months to live? He did just that. He lived. And now at 55 months, he's sharing knowledge about the disease he's been living with longer than most. His story of living with ALS. In 2010, Kevin became his fourth family member to be diagnosed with amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - a motor neuron disease known only to be fatal. Kevin ended his career. He climbed a mountain with his love. He traveled the U.S. visiting family and friends. He remodeled his home and made researching ways to slow his ALS progression a top priority. And slow it he did. From a love-at-first-site romance to the challenges of terminal illness, from hyperbaric chambers to energy field contraptions, from demonstrations of love to being abandoned on a mountainside, A Seeker's Harvest shows the impact of this whole body disease - body, mind and spirit - giving hope and more than just a little to think about. This is Kevin's brave story. A story about how he lived and continues pushing onward.

A Seeker's Harvest Paperback – January 2, 2016

$18.95

by Kevin Pollari (Author, Narrator), Heidi Schauer (Author), Kelly Paradis (Editor)

Available from Amazon

http://amzn.to/2a9FERU

Thankful Thursday: Grattitude

 

It's Thankful Thursday. I'm so grateful for so much around me to be thankful for.
I have friends like you that have hearts of gold. You make me smile and laugh even in the rough times!
‪#‎ThankfulThursday‬ ‪#‎friendship‬ ‪#‎smiles‬ ‪#‎laughter‬ 
 ‪#‎treasure‬ ‪#‎love‬ ‪#‎loyalty
‬

Staying Healhy with Dagmar Munn

I so appreciate Dagmar's sharing ways we can stay well and do small things to make life better living with ALS. Even just a small thing like sitting correctly can have a positive effect. For anyone who can sit in a chair, wheelchair, or even in bed, I encourage you to try what Dagmar's sharing. It's for you too, caregivers, family and friends. :) ‪
http://alsandwellness.blogspot.ca/2016/07/a-healthy-sit-als-fitness.html 
#‎HealthySit‬ ‪#‎DagmarMunn‬ ‪#‎ALS‬ ‪#‎Wellness‬ ‪#‎fitness‬

Good Afternoon: It's July Already

Good Afternoon. Late again getting here today. How's it going for everyone? 
I can't hardly believe it's July already. Will you do anything for the 4th? Some of you can't get out or go places. Do you have family over? Would love to hear what your thinking of doing if anything.
Cindy

 
‪#‎goodafternoon‬ ‪#‎July‬ ‪#‎4thofJuly‬

Johnny has ALS. He is Being Forced to Move

 

 This is Johnny my father in-law. He was diagnosed with ALS Feb 2015. Johnny and my mother in-law (Angel) have lived in the same house for 28 years. The owners of the residence have just recently gave my in laws a 60 day notice to move because the house is being sold. In these next 60 days they still have to pay rent here and find a new residence. They are on Social Security. (Limited income). We have exhausted all avenues. A friend had suggested that we should make a Go Fund me account. 

Here's a little bit about my father inlaw. He is one of the most loving caring people I know. He always does for other people out of the kindness of his heart. (family,friends, strangers). We are asking for help with 1st months rent deposit and moving truck... moving expenses
https://www.gofundme.com/28b2h69g

#ALS #HastoMove #help #share #Johnny 

Have a Beautiful Relaxing Day:You Are More

 

‪#‎Sunday‬ ‪#‎Blessings‬ ‪#‎takeCareofYou‬ ‪#‎share‬ ‪#‎tagTeam‬ ‪#‎ALS‬ ‪#‎Family‬‪#‎Friends‬ ‪#‎Inspiration‬ ‪#‎Encouragement‬ ‪#‎YouAreMore‬ ‪#‎Unique‬ ‪#‎Beautiful‬

Good Afternoon

#goodafternoon

Join Me In Staying Strong

#A1000Reasons #StayStrong #laugh #smile

Tell FDA to Stop Denying Treatment Options

Smile & Have a Great Tuesday

Smile and Have a Great Tuesday

#Tuesday #GreatDay #smile

Causes ALS aka Lou Gehrig's Disease, Dr. Lonnie Herman

http://www.facebook.com/DrLonnieHerman

 

Dr. Lonnie Herman has graciously agreed to do a webinar on what he has concluded causes ALS! Register today and reserve a space! ALS-Finding The Hidden Causes Webinar by Dr. Lonnie Herman. Wednesday, June 8th, 5:00 pm Eastern Standard Time Register for the event here: https://attendee.gotowebinar.com/regist…/3022174110184494852 
Try to watch this video before the webinar so you have a better understanding of what he is referring to: https://www.youtube.com/watch?v=R8VyUsVOic0&feature=youtu.be 
 Here is a preview of Dr. Herman's work in ALS: https://www.youtube.com/watch?v=XQpfWz5vC68 
Time to beat this beast called ALS! Hope to see you all there!

Happy Monday

#Monday

CReATe Virtual Journal Club; Helping Patients and Families Understand Scientific Papers

 

From Dr. Richard Bedlack: 
CReATe Virtual Journal Clubs are designed to help patients and families better understand recent scientific papers on topics related to motor neuron diseases. The articles are selected by folks enrolled in CReATe Connect. Enrollment in this is easy and free at https://www.rarediseasesnetwork.org/…/patien…/CReATe-Connect 
 Our next CReATe Virtual Journal Club is tomorrow, when I will be discussing my recent paper entitled "How Common Are ALS Plateaus and Reversals." Everyone is welcome to listen in and there will definitely be time for questions afterward. 
Webinar Details: Date: Mon, June 6, 2016 Time: 2PM Eastern Standard Time Link to join: https://global.gotomeeting.com/join/149540773
 
 For audio, you may use your computer mic/speakers through the link above or call in using your phone: United States (Toll-free): 1 877 309 2070 & use Meeting ID/Access Code: 149-540-773

#webinar #CReATe #VirtualJournalClubs #MotorNeuronDisease #ScientificJournals 
#GivingUnderstanding

When You Can't Look On Bright Side

You don't have to do it alone!

If you haven't already, please join us on facebook
https://www.facebook.com/ALSLouGherigDisease/

 

#StayingAliveIsNotEnough #NeverAlone #ALS #IWillSitWithYou #ALS