Take Time to Explore

3. Take time to explore what works best for you. What types of persons and behaviors do you respond to best? Do you prefer direct communication, do you withdraw, are you sensitive? Does too much information overwhelm you, or does too little heighten anxiety? How do you cope best? Being aware of who you are and what works best for you will help you as you make healthcare decisions, seek out support, and share your experience with family and friends. If it is too uncomfortable for you to explore these things, that’s ok. Ask someone to help you explore how you respond best.

Taken from the University of Michigan
Health System

Comprehensive ALS Clinic
Feel free to visit to learn more below

http://www.med.umich.edu/1libr/Neurology/ALS/Living_with_ALS_Guide.pdf

#ALS  #Explore #Healthcare #Decisions #UnivMichigan
#LearnMore

ALS Isn't A Medical Emergency:It's An Emotional Shock

ALS Isn't A Medical Emergency:It's An Emotional Shock 

 

2. "It is normal to feel afraid, uncertain, and at a loss of what to do next. It is a crisis which must be addressed, however try to not feel forced into making rushed decisions.There is time to talk and make decisions. You have been experiencing symptoms that up to this point have not been labeled as ALS. You have now “landed on” ALS. As you move forward, remember that this is your diagnosis, your life, and your timeline when it comes to making decisions regarding your care and living the fullness of your life. Take time to experience all your emotions and allow an adjustment period to this diagnosis and its implications. Life is different now".

I've taken this from University of Michigan. You can read more by following the link below. 

~Cindy~

http://www.med.umich.edu/1libr/Neurology/ALS/Living_with_ALS_Guide.pdf

#ALS #MedicalEmergency #EmotionalShock #UniversityofMichigan #GiveYourselfTime #TakeTime #ExperienceYourEmotions 

You Are Not ALS: You Are Uniquely You!

So you've been diagnoses with ALS. Now what!

And by the way this is just as important for those of you who have had ALS for awhile. We can be just as likely to give in to the devastation and wanna quit or be extreme negative!

Our humanness kicks in-our mind goes nuts and we start thinking-it's a life sentence, I'm going to die, what's the use, I quit, I wanna die, what about my family, my wife & my kids?

Let's slow down and take a deep breath. 

First of all & my focus today is, ALS does not define the unique person you are!

1. A diagnosis does not define you as a person. Take the opportunity to introduce your healthcare team to the person behind the diagnosis. It is important that they know that there is a “whole” person in front of them with dreams, goals, insights, fears, hopes, questions, plans, and loved ones. Connect on a personal level with your healthcare team. You are a person of many dimensions, one of which is now living with ALS.

Stay tuned for 2.
 

I am expanding from the great information from the University of Michigan Health Care System

http://www.med.umich.edu/1libr/Neurology/ALS/Living_with_ALS_Guide.pdf

#ALS #NotWhoYouAre #Connect #WholePerson

Happy Mother's Day

'Happy Mother's Day' to all you awesome and special moms!

Know your loved and cared about. Whether you have ALS, are a caregiver, family member, friend.......ALS doesn't define who you are!

~Cindy~

 

#MothersDay #ALS 

Happy May Day

Good Morning and welcome May! When I was a kid we made May Baskets from paper cups and pipe cleaners. We put them on friend's doorsteps. Did any of you do this?

I don't have a May Basket for you today but I do share my 'Garden of Hope'! May you cling to HOPE with all you are for an end to ALS.

~Cindy~

 

#ALS #Hope #GardenofHope

ALS is Not Your Story: It's Not Who You Are

ALS may try to rain down on life

Don't let it steal your hope and joy!

ALS is not you!

ALS is not your story

~Cindy~

#ALS #Hope #Joy #NotYourStory #NotWhoYouAre

Dandy Oskey: Inspiration Beyond Despair

Good Evening

I hope and pray your Friday has went well.

I'm still catching up with those I've connected 

with after being sick for awhile.

One of those precious people is Dandy Oskey.
Dandy, inspite of ALS is focused on his faith in Christ, is encouraging,uplifting and a candle in the darkness.

Watch Dandy's video below. May you be encouraged tonight and throughout the coming days.

 

#DandyOskey #ALS #Faith #Encouragement #LightintheDark #Hope #video 

Good Evening: How's Your Friday?

Good Evening

How is everyone doing? 

I'm enjoying my Friday at home. 

What are you doing this evening?

I've been away for quite some time after a serious infection, being misdiagnosed and finally a correct diagnosis and a couple surguries and being hospitalized longer than I cared for. 

I'm more than grateful to be home and on the mend. 

I'd love to hear how your doing and what you've been dealing with. 

#Friday #evening #onthemend

 

Good Morning

Have a beautiful day!

I am having  are reaction to dental work but not going to stop me from enjoying the weather and season. Just wish the cold would go away. LOL

#EnjoyYourDay #Snow #TistheSeason

A Good and Beautiful Morning

A Good and Beautiful Morning to everyone.

 

#BeautifulMorning

'CartKid' Brings Awareness & Provides Money for an End to ALS

Ben Costain's mother, Valerie Sue Costain passed away December of 2012 with ALS. Ben with his business partner, Craig Foss have developed a game, 'CartKid'.
Ben's motivation for designing this app and all future apps. is to give 5% of all revenue to the ALSA.org organization in his mother's name & honor.

Ben has reached out to ALS of Northern New England and they have agreed to share the game on their page. Would you mind sharing Ben's game and help bring answers and an end to ALS? Please help Ben to build awareness and raise as much money as possible.

You can further show your support by getting "Cart Kid".
Cart Kid is a worldwide gaming app, available on both Apple and Android app stores. Our main purpose is to raise money and spread awareness to defeat ALS. Please check out the game and share if you will please to bring awareness and an end to ALS.
You can also find 'Cart Kid' on facebook as well here:https://www.facebook.com/CartKid/

Thanks for your support and sharing.

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A Seeker's Harvest

What did Kevin Pollari do when given 18-30 months to live? He did just that. He lived. And now at 55 months, he's sharing knowledge about the disease he's been living with longer than most. His story of living with ALS. In 2010, Kevin became his fourth family member to be diagnosed with amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - a motor neuron disease known only to be fatal. Kevin ended his career. He climbed a mountain with his love. He traveled the U.S. visiting family and friends. He remodeled his home and made researching ways to slow his ALS progression a top priority. And slow it he did. From a love-at-first-site romance to the challenges of terminal illness, from hyperbaric chambers to energy field contraptions, from demonstrations of love to being abandoned on a mountainside, A Seeker's Harvest shows the impact of this whole body disease - body, mind and spirit - giving hope and more than just a little to think about. This is Kevin's brave story. A story about how he lived and continues pushing onward.

A Seeker's Harvest Paperback – January 2, 2016

$18.95

by Kevin Pollari (Author, Narrator), Heidi Schauer (Author), Kelly Paradis (Editor)

Available from Amazon

http://amzn.to/2a9FERU

Thankful Thursday: Grattitude

 

It's Thankful Thursday. I'm so grateful for so much around me to be thankful for.
I have friends like you that have hearts of gold. You make me smile and laugh even in the rough times!
‪#‎ThankfulThursday‬ ‪#‎friendship‬ ‪#‎smiles‬ ‪#‎laughter‬ 
 ‪#‎treasure‬ ‪#‎love‬ ‪#‎loyalty
‬

Staying Healhy with Dagmar Munn

I so appreciate Dagmar's sharing ways we can stay well and do small things to make life better living with ALS. Even just a small thing like sitting correctly can have a positive effect. For anyone who can sit in a chair, wheelchair, or even in bed, I encourage you to try what Dagmar's sharing. It's for you too, caregivers, family and friends. :) ‪
http://alsandwellness.blogspot.ca/2016/07/a-healthy-sit-als-fitness.html 
#‎HealthySit‬ ‪#‎DagmarMunn‬ ‪#‎ALS‬ ‪#‎Wellness‬ ‪#‎fitness‬

Good Afternoon: It's July Already

Good Afternoon. Late again getting here today. How's it going for everyone? 
I can't hardly believe it's July already. Will you do anything for the 4th? Some of you can't get out or go places. Do you have family over? Would love to hear what your thinking of doing if anything.
Cindy

 
‪#‎goodafternoon‬ ‪#‎July‬ ‪#‎4thofJuly‬