Good Morning

Have a beautiful day!

I am having  are reaction to dental work but not going to stop me from enjoying the weather and season. Just wish the cold would go away. LOL

#EnjoyYourDay #Snow #TistheSeason

A Good and Beautiful Morning

A Good and Beautiful Morning to everyone.

 

#BeautifulMorning

'CartKid' Brings Awareness & Provides Money for an End to ALS

Ben Costain's mother, Valerie Sue Costain passed away December of 2012 with ALS. Ben with his business partner, Craig Foss have developed a game, 'CartKid'.
Ben's motivation for designing this app and all future apps. is to give 5% of all revenue to the ALSA.org organization in his mother's name & honor.

Ben has reached out to ALS of Northern New England and they have agreed to share the game on their page. Would you mind sharing Ben's game and help bring answers and an end to ALS? Please help Ben to build awareness and raise as much money as possible.

You can further show your support by getting "Cart Kid".
Cart Kid is a worldwide gaming app, available on both Apple and Android app stores. Our main purpose is to raise money and spread awareness to defeat ALS. Please check out the game and share if you will please to bring awareness and an end to ALS.
You can also find 'Cart Kid' on facebook as well here:https://www.facebook.com/CartKid/

Thanks for your support and sharing.

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A Seeker's Harvest

What did Kevin Pollari do when given 18-30 months to live? He did just that. He lived. And now at 55 months, he's sharing knowledge about the disease he's been living with longer than most. His story of living with ALS. In 2010, Kevin became his fourth family member to be diagnosed with amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - a motor neuron disease known only to be fatal. Kevin ended his career. He climbed a mountain with his love. He traveled the U.S. visiting family and friends. He remodeled his home and made researching ways to slow his ALS progression a top priority. And slow it he did. From a love-at-first-site romance to the challenges of terminal illness, from hyperbaric chambers to energy field contraptions, from demonstrations of love to being abandoned on a mountainside, A Seeker's Harvest shows the impact of this whole body disease - body, mind and spirit - giving hope and more than just a little to think about. This is Kevin's brave story. A story about how he lived and continues pushing onward.

A Seeker's Harvest Paperback – January 2, 2016

$18.95

by Kevin Pollari (Author, Narrator), Heidi Schauer (Author), Kelly Paradis (Editor)

Available from Amazon

http://amzn.to/2a9FERU

Thankful Thursday: Grattitude

 

It's Thankful Thursday. I'm so grateful for so much around me to be thankful for.
I have friends like you that have hearts of gold. You make me smile and laugh even in the rough times!
‪#‎ThankfulThursday‬ ‪#‎friendship‬ ‪#‎smiles‬ ‪#‎laughter‬ 
 ‪#‎treasure‬ ‪#‎love‬ ‪#‎loyalty
‬

Staying Healhy with Dagmar Munn

I so appreciate Dagmar's sharing ways we can stay well and do small things to make life better living with ALS. Even just a small thing like sitting correctly can have a positive effect. For anyone who can sit in a chair, wheelchair, or even in bed, I encourage you to try what Dagmar's sharing. It's for you too, caregivers, family and friends. :) ‪
http://alsandwellness.blogspot.ca/2016/07/a-healthy-sit-als-fitness.html 
#‎HealthySit‬ ‪#‎DagmarMunn‬ ‪#‎ALS‬ ‪#‎Wellness‬ ‪#‎fitness‬

Good Afternoon: It's July Already

Good Afternoon. Late again getting here today. How's it going for everyone? 
I can't hardly believe it's July already. Will you do anything for the 4th? Some of you can't get out or go places. Do you have family over? Would love to hear what your thinking of doing if anything.
Cindy

 
‪#‎goodafternoon‬ ‪#‎July‬ ‪#‎4thofJuly‬

Johnny has ALS. He is Being Forced to Move

 

 This is Johnny my father in-law. He was diagnosed with ALS Feb 2015. Johnny and my mother in-law (Angel) have lived in the same house for 28 years. The owners of the residence have just recently gave my in laws a 60 day notice to move because the house is being sold. In these next 60 days they still have to pay rent here and find a new residence. They are on Social Security. (Limited income). We have exhausted all avenues. A friend had suggested that we should make a Go Fund me account. 

Here's a little bit about my father inlaw. He is one of the most loving caring people I know. He always does for other people out of the kindness of his heart. (family,friends, strangers). We are asking for help with 1st months rent deposit and moving truck... moving expenses
https://www.gofundme.com/28b2h69g

#ALS #HastoMove #help #share #Johnny 

Have a Beautiful Relaxing Day:You Are More

 

‪#‎Sunday‬ ‪#‎Blessings‬ ‪#‎takeCareofYou‬ ‪#‎share‬ ‪#‎tagTeam‬ ‪#‎ALS‬ ‪#‎Family‬‪#‎Friends‬ ‪#‎Inspiration‬ ‪#‎Encouragement‬ ‪#‎YouAreMore‬ ‪#‎Unique‬ ‪#‎Beautiful‬

Good Afternoon

#goodafternoon

Join Me In Staying Strong

#A1000Reasons #StayStrong #laugh #smile

Tell FDA to Stop Denying Treatment Options

Smile & Have a Great Tuesday

Smile and Have a Great Tuesday

#Tuesday #GreatDay #smile

Causes ALS aka Lou Gehrig's Disease, Dr. Lonnie Herman

http://www.facebook.com/DrLonnieHerman

 

Dr. Lonnie Herman has graciously agreed to do a webinar on what he has concluded causes ALS! Register today and reserve a space! ALS-Finding The Hidden Causes Webinar by Dr. Lonnie Herman. Wednesday, June 8th, 5:00 pm Eastern Standard Time Register for the event here: https://attendee.gotowebinar.com/regist…/3022174110184494852 
Try to watch this video before the webinar so you have a better understanding of what he is referring to: https://www.youtube.com/watch?v=R8VyUsVOic0&feature=youtu.be 
 Here is a preview of Dr. Herman's work in ALS: https://www.youtube.com/watch?v=XQpfWz5vC68 
Time to beat this beast called ALS! Hope to see you all there!

Happy Monday

#Monday

CReATe Virtual Journal Club; Helping Patients and Families Understand Scientific Papers

 

From Dr. Richard Bedlack: 
CReATe Virtual Journal Clubs are designed to help patients and families better understand recent scientific papers on topics related to motor neuron diseases. The articles are selected by folks enrolled in CReATe Connect. Enrollment in this is easy and free at https://www.rarediseasesnetwork.org/…/patien…/CReATe-Connect 
 Our next CReATe Virtual Journal Club is tomorrow, when I will be discussing my recent paper entitled "How Common Are ALS Plateaus and Reversals." Everyone is welcome to listen in and there will definitely be time for questions afterward. 
Webinar Details: Date: Mon, June 6, 2016 Time: 2PM Eastern Standard Time Link to join: https://global.gotomeeting.com/join/149540773
 
 For audio, you may use your computer mic/speakers through the link above or call in using your phone: United States (Toll-free): 1 877 309 2070 & use Meeting ID/Access Code: 149-540-773

#webinar #CReATe #VirtualJournalClubs #MotorNeuronDisease #ScientificJournals 
#GivingUnderstanding

When You Can't Look On Bright Side

You don't have to do it alone!

If you haven't already, please join us on facebook
https://www.facebook.com/ALSLouGherigDisease/

 

#StayingAliveIsNotEnough #NeverAlone #ALS #IWillSitWithYou #ALS

In Memory of Lou Gehrig

Thanks to Rick Berger for the image.

#Als #LouGehrig #Memory

Get Up, Dress Up, Show Up and Never Give Up

I have heard Dagmar Munn talk about getting up, dressing up, and showing up. Many times we read something or watch a video but we don't take action. We don't think it fits us or we just don't bother. After all we have ALS or our friend or loved one does. Why bother and just give up hope. NOT! Today be creative in taking action and share it with us.
Maybe it's sitting up, having a bow put in your hair. If your a guy how about getting a shave and a clean pair of socks. Have someone open the window. If you can be mobile have your caregiver/family/friend exercise your legs or get out for a walk.  Caregiver, family or friend...dress a bit nicer today. put on a smile,  take time to eat breakfast or lunch today.
Share with us will you all please! 

#GetUp #ShowUp #DressUp #NeverGiveUp

Good Evening

I hope your day has been alright. Feel free to share what your day has been like.

#Goodevening #sharing

Who are the Sid James Experience? We catch their manager, Lord Lee Bragg at work….

Tonight we catch Lord Lee Bragg, exclusive agent to the Sid James Experience, organising the June 4th MNDA fundraiser. We are also reminded of the sound that has taken the Sid James Experience in the last 20 years all the way from central Farnham to the hard shoulder of the A31. 
  https://onein400.com/2016/06/01/who-are-the-sid-james-experience-we-catch-their-manager-lord-lee-bragg-at-work/

 #SidJames#awareness #MND #ALS #Onein400

Strike Out ALS

In Honor of ALS Month 10% of all purchases from this link https://www.youniqueproducts.com/KLD/party/4090068/view
will be donated to the ALS Association to find a cure. For every $100 purchase you will recieve a free gift up to $30. All purchases will be entered to win the beachfront collection set from Younique. 

The aim of ALS awareness month is to raise awareness about ALS, gather support for those affected by this condition and to encourage funding and research into a treatment or cure.

ALS (amyotrophic lateral sclerosis) is a devastating progressive neurodegenerative disease which destroys the ability to walk, speak, eat and breathe. ALS was first recognized as a disease in 1869, by Jean-Martin Charcot, a French Neurologist. However, ALS is sometimes referred as Lou Gehrig's disease; named after Lou Gehrig, a famous baseball first basemen, whose career was stopped in 1939 when he developed ALS at the age of 36. At that time, ALS was given widespread public attention due to the high profile of this baseball player.


#ALS #StrikeOutALS

ALS Exercise with Dagmar Munn

 I firmly believe exercise no matter how small can make so much difference in our overall well being.

Dagmar inspires me so much. Having ALS does not stop Dagmar from doing all she can to stay healthy and fit.
Her creativity and tenacity to have a quality of life is an inspiration for all of us to follow.

We are all at different stages with ALS. If your not mobile ask your caregiver, and/or family members to do exercises with you. 

Watch Dagmar's video below and be sure to visit and join her blog. Your sure to be inspired to keep living a quality of life at whatever place your at. 

In this video, watch some gentle chair exercises for people living with ALS. Dagmar Munn shared this video in 2015, where she demonstrates some gentle exercises directed at patients with low mobility. They are really simple, slow, easy-to-follow sequences of movement that provide a break from long periods of sitting still.  You can find more details and more exercises like this in her blog: ALS and Wellness Blog – “Move Along"

 

Also be sure to visit https://alsnewstoday.com/2016/04/22/als-exercises-move-along/ for news and information as you proceed on your journey. 

#alsnewstoday #als #DagmarMunn #exercise #qualityofLife

"Until I Say Good-Bye", Susan Spencer-Wendel: Video: Book

Susan's story profoundly touches my life. Her courage and determination to live with joy and go for all the gusto she was able with her family, friends and doing things she loved doing. Never a more grateful example of an individual have I encountered. Susan is an example for all of us with ALS, caregivers, family and friends to keep before us as we go forth combatting this evil thief of a disease, ALS!

Cindy

 

Susan Spencer-Wendel’s Until I Say Good-Bye: My Year of Living with Joy is a moving and inspirational memoir by a woman who makes the most of her final days after discovering she has amyotrophic lateral sclerosis (ALS). After Spencer-Wendel, a celebrated journalist at the Palm Beach Post, learns of her diagnosis of ALS, more commonly known as Lou Gehrig’s disease, she embarks on several adventures, traveling to several countries and sharing special experiences with loved ones. One trip takes Spencer-Wendel and her fourteen-year-old daughter, Marina, to New York City’s Kleinfeld’s Bridal to shop for Marina’s future wedding dress—an occasion that Susan knows she will never see. Co-written with Bret Witter, Until I Say Good-Bye is Spencer-Wendel’s account of living a full life with humor, courage, and love, but also accepting death with grace and dignity. It’s a celebration of life, a look into the face of death, and the effort we must make to show the people that we love and care about how very much they mean to us.

#video #als #SusanSpencerWendel ##UntilISayGoodbye #book

                                     

A New Year of Hope

It's a New Year and a Happy 2016 to all of you.
Another year and let the 'Hope' continue. 
Let's not loose hope for an end to ALS.
Rivqa and Cynthia